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PJ’s in 2016

 

In 2016, we had our last PJ Days organized by Find the Common Thread Foundation. It wasn’t going to be the last, but as the month went along, the realization came that we have done as much as we can do from our end toward our lofty goal.

It started off on February 27, 2016 and ended off on March 31, 2016. An entire month (Autoimmune Disease Awareness Month in the US) and inspired by the writings of Dr. Noel Rose, and the efforts of AARDA (American Autoimmune Related Disease Association.)

On February 27, 2016, Jasper Junior Olympics’ Dream Team (the little guys) raced in their PJ’s. Jasper Junior Olympics is the longest standing and largest participant ski race in North America with over 400 skiers racing the weekend.

The Dream Teamers raced in PJ’s and the organizers of the race donated $1 for every skier in the ENTIRE race – a surprise beyond belief. We were just thrilled to have them participate in PJ’s and help us with our awareness efforts.
February 29, was the official PJ Day in Jasper with our annual Jasper Volunteer Fire Brigade Pancake Breakfast, followed by a PJ Parade through town at lunch time. The turnout wasn’t near as big as last year’s over 700 people, but the spirit was as high as ever with those who made it out.

IMG_2018People throughout town did their own PJ events – PJ Yoga, PJ runs, PJ breakfasts, PJ fitness classes, PJ dinners, and more in the coming days that raised money and more important, raised awareness for this disease that kills more people than any other, yet for various political and economic reasons isn’t counted and not part of the official stats.

The true cost of autoimmune disease is absolutely staggering and one day in the future we will all be a little ashamed for letting this slide by the way it has thus far. All except the folks in Jasper who have gone above and beyond to do their part in righting a wrong.

 

IMG_2084The weekend of March 12 and 13 saw a gathering of Healers using various complimentary modalities and volunteering their services to not only raise the awareness bar but also give people supplementary healing techniques to aid in the healing process for a disease that according to the western medical paradigm, has no cure. It’s hard to heal your life when you’re told by your doctors that there is no cure.

This was a powerful weekend, and I had hoped that it would spill over into something bigger. My dream this year was that with the money we raised we could make Jasper the premier healing destination on the planet. I still think this is a very viable option, however I am not going to be part of this dream and will let it manifest on its own. I have a person in mind that would make this dream a reality, but I will let that person move at their own pace, and if it is meant to be then it will be.

JAG and PJsOn March 18, Jasper Artists Guild (JAG) put on a great show that was inspired by the theme of healing. The Healing Nature of Art was a quaint opening with great food and bevies supplied by The Downstream Bar and beautiful, thought inspiring, healing art donning the walls of the cozy little gallery. We are fortunate to live in this magical place with these magical people we call our neighbours and friends.

On Sunday March 20, 2016 we had a fantastic PJ moment at Jasper’s ski area Marmot Basin. My second family. People who have supported our efforts from day one. I don’t mean just day one of PJ Days, but day one of my personal journey with this disease. I am forever grateful for all they have done for me, my family and our foundation’s efforts through the last six years. We had a group PJ ski at Marmot Basin that felt as wonderful as the previous year’s PJ Parade in the town of Jasper. The backdrop of this PJ event was unsurpassed, and the spirit of the crowd was amazing.

 

IMG_2167The final event of the month, March 31, was a PJ Onesie party put on by the Jasper Legion. I couldn’t personally attend as I had a doctor’s appointment to deal with the new flare of my disease which is the reason that I am personally pulling out of this endeavour and the foundation. I am back with the warriors, fighting for a normal life. Fighting against a beast that has taken too many friends’ lives, and this is a fight that will require all of my efforts as there are new symptoms that are deadly serious, along, of course, with the treatment protocol (which is often the mortality factor after diagnosis – and this is where the stats fail the autoimmune disease patient.)

Jasper gets it. As far as I’m concerned, this is the most educated group of people when it comes to the issues of Autoimmune Disease. More so than even collectives of patients in some cases. That’s because Jasper is a magical place full of magical people who are full of compassion, empathy, curiosity and a will to do something right for the right reasons.

I am forever grateful to everyone who has helped out over the last five years. I have no words to express the gratitude to my sister, who despite trepidation and a strong aversion to go into her own history of Psoriatic Arthritis has stood behind me no matter what. Her amazing family who have put blood, sweat and tears (embarrassed tears) to help support my crazy visions over the last five years. I am eternally grateful to my own immediate family, my unwaveringly supportive husband, my inspiring daughter, my strong, solid parents, and of course my extended family, all of whom have been there through thick and thin. I am grateful to friends and neighbours and even strangers who took up the cause across Canada, the US, Australia, Mexico, Europe and who over the last five years have done so much on PJ Days to make them special and memorable and something that is meaningful and lasts in the psyche of our town and social consciousness here and abroad.


I am truly blessed, and despite the hard times, I can say with total sincerity that this disease has brought out so much more good than bad, and it has been a journey of discovery and awakening unlike any I could have dreamed up on my own.

It is now in your hands. If it is meant to grow, it will grow because of you. If not, then we certainly gave it the old college try, and there is absolutely nothing wrong with that. I leave you with this video I posted on Facebook before the month started… I was a little blown away by the number of views it got, but it is now gone as I have deleted my Facebook account – part of Letting Go of the stuff that isn’t good for me. I have been on steroids since the end of March and already look much different than I do in this video. Love the stuff ūüėČ

No pred
March 2, 2016
About a month on 50mg of pred
May 10, 2016

Thanks for being so awesome everyone. May the Power (not Force) be with you.

With best wishes and much much Love,

Marta Rode
Founder of Find the Common Thread Foundation (now retired)

 

Sights might be off

Just a thought I’ve been pondering for the last year and a half.

Are we treating autoimmune disease at the wrong point of the disease process?

The treatment for the heavy duty (life threatening) autoimmune diseases involves beating down the adaptive immune system (B and T cells) with chemotherapy, biologics, immune suppressing drugs, and steroids. By doing this we bring a lot of risk into the mix and often the risk of treatment for the disease is on par with the risk of the disease itself.

The thoughts that have been swirling in my head, particularly last year while I fought with insurance and had to wait way too long to get my treatment (a treatment that costs over $12,000 and is the ONLY available treatment for me to stop a major flare – and keep in mind that a flare with Wegener’s is not what other people with autoimmune disease describe a flare as – with Wegener’s a flare is systemic, and can turn deadly within days, it’s not sore joints, or ‘I’m not feeling well today’ kind of thing.) On my last flare I got the usual granulomas throughout my lungs (scarring that litters the lungs and in my first round was misdiagnosed as terminal lung cancer) but I also had a few perforating lesions in my lungs (holes – one of them 3cm in diameter) and then just to add some fun to the game, I got significant Pulmonary Embolism that littered my lungs with blood clots. There wasn’t a lot of room for oxygen in my lungs last year, so I sat around a lot, sucking on oxygen, and thinking about solutions.

This is when I thought about the innate immune system. This is our first line of defence. This is where things get messed up in the first place, and we are not looking at what aspect of this initial response needs a fix. It could be the chemical messages that cells leave behind for the immune system to trigger a response. It could be those epithelial cells that are reading the mail all wrong. There are so very many steps that take place before our adaptive immune system comes into play, and eventually gets punished by chemo, ablated by biologics, and beaten down by pred. But the adaptive immune system is a player that becomes involved long after the initial onset of things going wrong. Also by ablating the B cells, as is done with the biologics, we are destroying all of our history of gathering immunity. All of our vaccines gone. All of our childhood disease history and adaptation, gone. After a treatment with biologics, the patient is essentially a newborn baby with about 6-8 months of waiting for the bone marrow to just even produce a batch of new B-cells (now with no memory of your life’s accumulation of immunity.) We are like the aliens in that Tom Cruise move “War of the Worlds”. ¬†All you gotta do is sneeze on us, and poof, you win.

Below are some questions I posed using muscle testing to distinguish truth from falsehood in my assertions. (If you want to know more, you can grab any book by Dr. David R. Hawkins and read up on his gift to humanity.)

The current treatment paradigm for autoimmune disease is on the right track.
False
Treating the adaptive immune system using immune surpassing drugs is the most efficient way to treat autoimmune disease.
False
There is a cure for autoimmune disease.
True
Looking for answers in the innate immune response is a more viable treatment option. True
Neutrophils are part of the problem.
True
Examining the process of chemotaxis would lead in a direction of new treatment and discoveries.
True
It is possible to direct chemotaxis in a way as to not compromise overall health risks. True
Endothelial disfunction is a first step in autoimmune disease process.
True
Pathology in endothelial cells is a first step in autoimmune disease.
True
A positive finding in endothelial cell pathology affects autoimmune disease, heart and stroke, cancer, and mental health.
True

Autoimmune disease, heart and stroke, mental health and cancer are related in etiological manifestation.
True

Autoimmune disease is related to excessive or prolonged permeability of the endothelial monolayer.
True

There is a connection between vascular endothelial cell, neutrophil recruitment and hormone trafficking as part of the onset of autoimmune disease.
True

The answer to autoimmune disease lies in vascular endothelial cells.
Soft True (a little weaker than the others)

The answer to autoimmune disease lies in lymphatic endothelial cells.
True
The respiratory epithelium is the underlying problem with Wegener’s Granulomatosis. True

There is a way to improve respiratory epithelium function without the use of immune suppressing drugs.
True
Simple epithelial tissue abnormalities are the problem behind AI disease.
True

IL-8 (interluken-8) protein (chemokine) disfunction is the trigger that sets off autoimmune disease.
Soft True (again weaker than the other muscle test responses, but still not the same weakness as False.)

IL-8 disfunction can be repaired using genetic manipulation.
True

Decreasing glucose intake will alter the chemotaxis that gets the neutrophils going.
True

Sugar comes into play with the question near the end of my query. Maybe the thousand(s) fold increase of sugar intake in our population (from the perspective of our evolution) could be triggering the mixed messages during chemotaxis. After all watch your kid trying to communicate with you after a slurpee or a hand full of jelly beans. It’s never good. It’s always chaotic, and often loud and nonsensical. That is autoimmune disease.

I sent this idea out to Dr. Bruce Lipton last year when I was stuck in sick-world limbo, but I never got a response from him. It’s ok though, we all ignore some emails, so I can’t hold it against him. Can’t judge someone for stuff you yourself do. Someday we’ll change our sights. Someday autoimmune diseases research will save not only autoimmune disease patients but patients with cancer, AIDS, mental health, and heart and stroke diseases, as all of these are associated with an immune system misfire. Someday we will all be healthy and productive and in the sci-fi book I’m writing on this subject, I have figured out the answer, and with that answer come some added features we couldn’t have even dreamed of. But for that, you have to wait and read the book.

 

2017 PJ Day Events

This year we’re going to keep it simple.

Wear your PJ’s all day, take photos, share the photos and start the conversation going. Without the awareness, we lack the will, without the will we lack the funding, without the funding we lack a cure, without a cure we have too much pain, death, and high costs to families and our society. PJ Day raises awareness for autoimmune disease one PJ at a time. Feel free to start your own PJ Day event and raise the awareness bar from your corner of the world.

screen-shot-2017-03-02-at-10-57-03-am

Here’s another poster if you would like to print one out and share it.
pj-day-2017

At 5:30 join fellow PJ clad Jasperites and visitors for a collective PJ march downtown Jasper. We will meet at the Info Centre and start marching down Connaught Drive, turn back towards the centre of town at A&W down Patricia, finishing off at the Jasper Elementary School.

Go out for dinner and drinks in your PJ’s and have the most unique Happy Hour of the year.


If you are hosting additional PJ Day Events, add them below in our comments section. 

Please be sure to include the following:

  • event name
  • event location
  • event start time
  • event cost, if any
  • brief description of event

Changing the World

For those who don’t know Dr. David Hawkins (Doc Hawk) this might be hard to swallow, but worth a consideration. Humour is his tool for helping us understand transcending levels of consciousness.

We can only change the world by changing ourselves. It all starts from inside.

I so dig Doc Hawk. I’m paying some karmic debt in a hospital bed right now, and am grateful for it because once outta here, that debt will be paid and I can move forward to raise my own levels.

Keep calm and raise on.

Last One

It’s hard to think of healing, when you’re dying all over.

It’s not easy when you’re dealing with being a ‘crossover’.

You’ve always been the ‘strong one’, or so you thought…

but now your confidence is shattered, your certainty is naught.

 

Chronic illness has this way of taking everything you are,

and making every second of every day a new and permanent scar.

 

What we forget when we are in the thick of it,

is that we have a choice.

We can pull ourselves through

when we’re finally sick of it.

 

Sick of being a victim.

Sick of searching for blame.

Sick of being a patient.

Sick of playing their game.

Sick of the boxes of pills.

Sick of reporting your ills.

 

We wait for answers from outside of ourselves,

from people on pedestals, in white lab coats and shelves.

‚ÄúBut they know so much more about us than we‚ÄĚ

They make us go ‚ÄúAhhh‚ÄĚ and bang on our knee.

We give them our power, and wait…. wait and see.

We’re holding our breath for answers from folks,

mere humans like us who poo and who poke.

Yet we wait till our death.

 

The role of the victim is a powerful one,

without its powerful juice, the evening news would be none.

Without it there would be no wars, no fights, no drama,

we could just get sick and deal with the trauma.

Too many get hooked on this powerful drug,

it doesn’t come in a box, just ‘down on your luck’.

 

The answer to healing lies within,

that’s your Higher Self, that barely audible din.

It’s whispering the secret that you need to hear,

that in your life YOU’RE the puppeteer.

The answer’s within, not outside

it starts with Courage, and it ends with LOVE.

Long Time Coming

Hey friends,

It’s been a while. Life just got up and got away on me, and although feeling a little bit of guilt for not writing, I still haven’t gotten myself to do it – all kinds of excuses, but who cares about excuses because all they really are is a way to alleviate guilt.

I have to write about my newest discovery. That being Dr. David Hawkins and his body of writing.

I stumbled onto my first, his last, book in an almost mystical way that I wont go into here, but it was very much like that book wanted to be read by me. It was the jumping board that has led me into a number of his other books because I found my first, his last, so powerful and empowering. I know that different books, ideas, theories, affect us differently at different times in our lives, resonating the strongest when we are either ready for the ideas, or when we need them most. I believe that I had to go through what I went through with this autoimmune disease process to get me ready to comprehend and embrace the writing within.

I understand now that what I thought was the cause of the onset of my particular flavour of autoimmune hell, was only a small part of the problem that triggered the disease process. I understand now how many other factors were involved and how much power lies in our hands vs those of the medical profession. The medical profession is great at dealing with the acute phases of the disease process and pulling us out of the proverbial glue, but such a large part of¬†the healing lies in our own hands, it’s unfathomable. This is a problem in that many people will choose to go the ‘lazy’ North American route of “fix me doctor with your magic pills and potions and machines that go ping” but I believe to be truly fixed, we need to do some heavy lifting inside our own minds. Heavy stuff, I know. But man oh man is it rewarding, and literally ‘enlightening’ in that you actually feel lighter when you start the process.

Ironically there are many doctors who upon feeling uncertain about a patient’s physical issues will default to telling that patient that the issues are in their heads and should maybe try some antidepressants. By sheer chance, they are partially right but for all the wrong reasons. They are right in that if one goes inside much pain can be removed, and triggering emotions can be tamed, but they are wrong to prescribe more drugs to numb the through process and assuming that your disease is ‘in your head’. My mom had a jerky female doctor who had the audacity to tell her “You’re as healthy as a horse. How can your husband stand living with your constant complaining?” Mom forbade me from calling that doctor’s office and giving her a piece of my mind, or of reporting her to the College of Physicians and Surgeons, but that doc will have her own issues to deal with in living with so much pride and jerkiness.

I will continue on the journey I’ve started from that first book of Dr. Hawkins that I read Letting Go, and I hope that you can read it and get as much as I’ve gotten out of the experience. This is a life changing book if you play around with this very easy technique to transcending levels of consciousness. Another one that is great (it does repeat itself a lot because it was taken from a series of lectures) is Healing and Recovery, which gives you an absolutely tangible technique of releasing pain on the spot. I can now get rid of headaches in about 30 seconds to a minute without any drugs. Pretty amazing since headaches are the first symptom that has plagued me since onset. I strongly believe that everyone with chronic illness needs to read these books if they want to get a handle on their lives. But we also all have to go through our own journeys of discovery and perhaps the payment of some karmic propensity that we’ve carried with us for who knows how long.

If you go into this with an open mind, an open heart, and an open soul, there is no predicting how far you will go in your healing and subsequent transcendence. I hope to go far enough to feel the non-linear existence but only time will tell.

In the meantime, get your calendars ready for March 18, 2016, when we have our FIFTH (woohooo) PJ Day to raise awareness and stand in solidarity with the millions out there dealing with this crap behind closed doors.

Peace to all.

I’ll be better at updating this blog

I haven’t been on here much but I’ve just gotten off Facebook and will have more time to put my thoughts down here without the added drama of constant bickering and distractions. I will write something thoughtful soon as I start planning our next PJ Day (2016) which will take place in the middle of Autoimmune Awareness Month.

Stay tuned and keep on fighting the good fight…. here’s to everyone’s ultimate health.

Peace and love!

Thank you once again Jasper!

I keep telling my daughter to stop using exclamation marks and reserve them for when it really matters. In this case it really matters. Exclamation mark!!!

We just had the best PJ Day yet, and it couldn’t have happened without the hundreds of volunteer hours and dozens of donations in cash, services, and product. Jasper is the most amazing community I have ever seen, and I am lucky to be a part of it. Together we raised the bar of awareness yet another notch, but we also raised some money¬†toward our efforts to be supportive of people and families affected by this disease in real time.

We can’t undo the undoable, but we can be there as a shoulder to lean on, an empathetic ear, and a support net for¬†a family like yours and mine,¬†going through the unfathomable. Jasper is unmatched in it’s power to make things fantastic. Go big or go home, takes on a whole new meaning in the little town in the middle of the giants of rock surrounding us. Together we are a powerhouse.

You see I had written a whole swath of thank you’s on this page and hadn’t saved them when my computer crashed. It took me hours and I lost it all. Blaming it on chemo brain for not saving. I then bought some thank you cards to write them out and hand deliver them, and that didn’t materialize. I at least managed a thank you letter in The Fitzhugh, but I was so grateful by the outpouring of support that I felt I needed to do more, and with each passing day, I felt guiltier and guiltier for not having done it, until writing the thank you’s became an unbearable idea because each thank you would have to¬†include a ‘sorry it’s taken me this long to do it’ addition to the card.

So thank you everyone!!!!!!

When I heard this yesterday on ‘q’ – it made me bite the bullet and at least write an apology for being such a goofball.¬† http://www.cbc.ca/radio/q/schedule-for-monday-may-4-2015-1.3059765/should-every-day-be-email-debt-forgiveness-day-1.3059785 Pictures will be posted soon.

Anti-vax vs Pro-vax vs Inteligentsia

 

As I was driving around doing erands last week, I stumbled on Cross Country Check up on CBC. Rex Murphy was checking up on Canada, and had as his guest, Dr. Michael Gardam.

It was a pleasure to hear Dr. Gardam speak on CBC, and
I’ve decided that Rex Murphy is definitely a ‘pro-vaxer’, I waffle, and Dr. Gardam is the intelligentsia (only the forward moving type.)

It was very empowering hearing Dr. Gardam’s opinions on vaccines, the hot topic of the day in regards to Measels, and a hot topic with me as¬†the¬†H1N1 flu shot¬†was the trigger, twice, for my¬†incurable and potentially life threatening¬†health issues. I’ve been getting sucked into too many discussions on this polarized vaccine¬†topic, where “you’re either¬†with us or you’re against us” mentality rules the day. This feels like a black and white¬†world, where as soon as you question how things are working, you’re an anti-vaxer, and should probably go shine your aluminum foil hat. This is how I’ve been feeling while listening to the media, sad that we’ve gotten to this point, where opinions are so strong, people are seriously talking about eliminating basic human freedoms. The freedom to choose what we inject into our bodies. It’s absolutely mind blowing.

I don’t jump into these conversations¬†because I want to stop anyone from getting a vaccine, but because I want them to make smart, informed decisions that weigh risk and benefit as it relates to¬†them¬†and¬†their particular health and¬†family history vs the medication or vaccine you’re deciding on. I share my experience in the hopes that the mistakes I made (jumping in pretty blindly, and despite my gut feelings, believing that it is as safe as all the nurses and doctors said it was,) can be spared someone else, as sadly, this is a road of no return.

So it was nice to hear Dr. Gardam speak for the 20 or so minutes I was in the car. Pretty much everything I heard him say was in line with my own thinking, and suddenly I didn’t feel the kook that all the loud pro-vaxers, and their media puppets were trying to make me feel. He said that people should research and truly make informed decisions. Check. ¬†He said that people should be aware of the sources of their info. Check.¬†He said he trusts the old proven vaccines. Check. He said we need to rethink flu and young vaccines. Check.

So it was with great interest that I listened to a caller ask about a number of autoimmune diseases. She stumbled around her words too much though to ask a good question.I wanted to hear Dr. Gardam’s response. Problem is people at large, still don’t get that autoimmune diseases are a laaaarge number of diseases with the same etiology, so she was mumbling a few autoimmune diseases, and then she did it…. she dropped the ‘Autism’ bait. Ughhh. As soon as I heard it I knew¬†I wasn’t getting an answer. Then it became a discussion of the discredited MMR/Autism study. Question gone. Someone else called, and then another person brought up autoimmune disease, I think type 1 Diabetes, maybe MS, but then again, in comes, Autism, and this completely removes the conversation from where it needs to be.¬†I was so hoping to hear him speak on autoimmune disease, but I didn’t get to. Apparently he did, I’ll have to go back and listen to it.

I believe we need to be skeptical and informed. Just because a non human entity has told you that this is safe to inject, doesn’t mean you have to do it. If there is long standing data to support safety and efficacy, by all means protect yourself and your family. But if this¬†vaccine is younger than some of your shoes, maybe you should do some serious self educating and make a truly informed risk-benefit assessment.

When you’re¬†looking at¬†the numbers remember that even if the chances are low, if you’re that person who got the rare negative side effect of the drug/vaccine, suddenly that low risk means nothing, and your life has taken a turn in a different, unpleasant¬†direction.

Perspective Break: Gardisil
A spanky new HPV Vaccine to prevent HPV spread through sexual activity

Approved for human use in 2006.
Vaccine demographic: 10 year old girls across the country
Long term side effects: Unknown (it’s not eve 10 years old)
Cost of one dose: $400-$500
Since June 2006 Merck has globally sold 169 million doses
(you do the math: hint – it’s in the Billions)
Serious Side Effects: Rare –¬†5 reactions in 11,000 (possibly, probably or definitely related to the injection.)
(here’s the math)
Since June 2006, 76,818 young girls are possibly, probably, or definitely having a shitty go at life because of this vaccine.

Are we really OK with having 76, 818 young girls sick,¬†with serious life altering complications from a vaccine? To prevent sexually transmitted diseases? We don’t think very highly of our young girls. Is that the kind of place my daughter is going to grow up into?¬†This is just one example of¬†a young vaccine. There’s that pesky flu shot, medical boards are trying to convince us is absolutely THE thing to do if you’re a smart citizen.

Couple more points worth noting when you decide where to place your trust.

Russia and Canada are the only two countries in the G8 who do not have a system to support victims of vaccine adverse reactions. Yes, everyone knows there is a risk, and with the numbers we vaccinate, the numbers with adverse reactions will go up as well, but in Canada, our government has chosen to turn a blind eye, as well as protecting pharma companies from litigation when it comes to vaccines.

When you hear Health Canada tell you the vaccine is safe¬†because they have¬†very low reports on adverse reactions, that’s¬†because the system is set up in a¬†way to minimize feedback on vaccines. Whether it’s accidental or intentional is not my business, but it does skew the data and the information we are getting from¬†Health Canada¬†does not paint a true picture. Anyone can check this out. Try to report an adverse side effect from a pharmaceutical drug on Health Canada’s website. Anyone can do it.¬†Now go and try to do the same with a vaccine. Two different worlds. With a vaccine report, you have to get your doctor to fill it in and submit it on your behalf. Several pages. What conscientious patient would do that to their doc? All my docs know that the H1N1 triggered me (it’s also in¬†the¬†drug insert¬†– Vasculitis is a rare but possible adverse reaction to the H1N1 vaccine) but I would never ask them to take time away from their other patients, and to put their reputation on the line so they could write a vaccine report for me, because let’s face it “you’re either with us or against us…”¬†even within the medical community. Why I was so pleased to hear Dr. Gardam speak in the open minded, academic manner he did on this topic. It was truly a breath of fresh air.

So there. I’m the eternal optimist, but my experience has taught me to question, to not bleat on at volume,¬†to not believe with¬†blind faith that a big corporation (that has only it’s stakeholders/shareholders to answer to,) has my best interest in mind.

10 Reasons You Should Wear Your PJ’s All Day on February 27, 2015

Fourth Annual PJ Day
To Raise Awareness for Autoimmune Disease

This year, on Friday, February 27, you will have another opportunity to make a stand, to show support with this act of nonviolent fashion disobedience, to be part of the front lines of change, to help someone who might feel they have nobody in their corner, to be part of the fourth annual PJ Day to raise awareness for Autoimmune Disease. Here are ten reasons to give your boss when they challenge your fashion choice at work.

  1. Parks Canada, JasperNonviolent Fashion Disobedience

    Because when you deviate from the norm, people notice. They ask questions. They become engaged, and curious. We can start the conversation in the comfort of our most healing clothes, and empathy.¬†If it’s cold out, just throw them over your outdoor clothes, that’s what we do when we go PJ skiing, or all over the place¬†like last year when it was -32C .

  2. Beatufiul PrinnsTo Show Support
    For the people who are held captive in their pajamas by one of the 140+ Autoimmune Diseases and Disorders. For weeks. Months. Years. Living in them between remissions. Every age group is susceptible.
    There is no cure.

  3. BoardFor Someone You Know
    1 in 5 people are affected and 3 out of 4 of those are female. Someone you know and maybe love, is dealing with symptoms ranging from unpleasant to life threatening due to AI disease, right now. Guaranteed.

     

  4. First Year Respiratory Therapy Students, NAIT, EdmontonMake A Stand

    For those who can barely stand in the face of a devastating disease. People whose previously healthy lifestyles are left in the dust, replaced by operating rooms, chemotherapy, infusions, immune suppression, and a complete alteration of life. Stand with them as they fight their way back.

  5. Surbiton Girls from UK Supporting our Cause. How 'bout you?Change status quo

    Autoimmune Disease comes with a heavy cost. To lives, to communities, to the workforce, to healthcare and society at large. We can start the cogs of change by raising awareness. Step out of your comfort zone for a good cause. With baby steps we can get there.

  6. Jasper the bear in JammiesGive a Hand
    All money raised on February 27, 2015, will go to the Macmahon family of Jasper who are currently in the midst of an autoimmune disease battle of epic proportions.

  7. The girls and guy, one seriously awesome guy, who put it all out there.Show the powers that be

    If you or someone you know is affected by autoimmune disease (as is surely the case) and you wear your PJ’s in a show of nonviolent fashion disobedience, everyone will see symbolically, the¬†cost this disease has to our society. One in five people (and their families, friends, bosses, neighbours, colleagues…we’re all affected)

  8. marmot awesomeWe are One
    We have been kept apart for too long. We are one disease, different manifestation. Your MS, my dad’s Lupus, my Vasculitis, my sister’s Psoriatic Arthritis, they’re all autoimmune disease, the same disease etiology. We are rare in our disease manifestation but together we are a fifth of the population. Shouldn’t we have a say?

  9. Mrs Curries Grade 7Together we can do it
    Together. If we want to see something happen in our lifetime. Time to look at the forest and stop focusing on each tree. By finding the common thread between the different autoimmune diseases we might find a cure for all autoimmune disease.

  10. Hair on Earth JasperAutoimmune Disease be gone
    Find a cure for autoimmune disease, all of us are disease free… MS, RA, Lupus, Vasculitis, Colitis, Celiac and over a 100 more (mostly rare diseases,) gone. 20% of the population back from the doctor’s office and the hospital visits, working, living happy lives with happy families. Future generations only knowing about autoimmune disease from what they read in history books. Let’s make this dream a reality.

When you are done wearing your PJ’s on Friday, feel free to wear them all weekend if you want to keep the drive alive. Saturday, February 28,¬†is International Rare Disease Day (many of the Autoimmune Diseases on the list are also Rare Diseases by definition.) Sunday March 1st is the first day of Autoimmune Disease Awareness Month. Keep spreading the word. For you.¬†For your kids. For the ones you love.¬†For all of us.