Autoimmune Disease affects one in five people (AARDA – American Autoimmune Related Disease Association,) 75% of which are women. From the ones that most people know of like MS, RA, Diabetes, Lupus, to ones that you have heard of but had no idea it was an autoimmune disease or disorder like Raynaud’s Syndrome, Narcolepsy, Eczema, Aloepecia, to very rare that you only hear of if you’re one of the lucky ones to get it or have a friend of family member who has, like Wegener’s Granulomatosis – there are over 140 altogether. It is one of the top ten killers of women under 65 years old and female children. Even though it affects 20% of the population it often takes patients months, years or decades to get a proper diagnosis at the expense of eliminating the possibility to reverse the disease process. Autoimmune diseases (the more lethal ones) are often caught when the disease becomes acute and the patient is in serious distress or life threatening situation, whereas if caught early many autoimmune diseases can be reversible.
Autoimmune disease, previously perceived in popular culture as “an old person’s disease” is now pulling strong productive members of society out of the work force and rendering many in financial distress. There are babies younger than one who are getting diagnosed with diseases previously thought of as reserved only for the elderly in our population. These young children, once diagnosed, are on toxic, drug cocktails for their entire lives not only having to worry about the ravages of the disease but also the potential deadly side effects of the medicines that keep them alive.
Autoimmune Disease attacks different parts of the body sending patients to various specialists who deal with that area of anatomy. This is the reason we are so very segregated as a disease group. There is research going on within different disease groups but the information stays within that group and doesn’t have a chance to be reviewed by people who are working on the same problem from a different (disease) perspective .
Autoimmune Disease comes with a heavy price tag on individual lives, families, employers, insurance companies, health care costs, and overall cost to our economy, yet the attention and funding going towards research in this area is minimal compared to two other major disease groups. But nobody has studied this problem in Canada as a whole. We are basing all of our information from AARDA in the United States.
Raise public awareness of the widespread presence of autoimmune diseases and to raise funds to contribute to research to find the common thread unifying various forms of autoimmune disease in order to discover preventative measures and develop cures.
The foundation is designed to focus on:
- Raising awareness for autoimmune disease as a whole
- Support research that falls within the overall goal of the Foundation
- Build relationships and create partnerships with other foundations to create a unified disease group front
- Work with various organizations and partners to increase our reach and develop products that meet our mandate
- Create relationships that will benefit everyone and hurt no one.
- Work towards creating a Canadian database and solicit research towards Canadian epidemiology for this disease group
On The Ground
- Promote healthy choices to minimize risk and provide information and support for the diagnosed
Update: This Foundation was disbanded in 2020 after the start of the pandemic. I have removed our board members, as I know some of them don’t agree with my stance on vaccine mandates. It was a good run while it lasted, and we raised some awareness about autoimmune disease.
My introduction into autoimmune disease was due to a vaccine injury in 2009. I didn’t think this is something I wanted to focus on because my goal was to unite autoimmune patients into one cohesive unit (which happens to be 1/5 of the population). Vaccine injuries on the other hand affect a small amount of people, are a very divisive subject to discuss, and I didn’t feel this was something worth tackling. The problem is that our government made it a topic worth tackling, and have taken rights away from people who have real legitimate reasons for not getting one. In Canada, our government has ostracized and vilified almost 6,000,000 people. For a medical choice. A right every patient has.
Sadly, I feel like I need to focus on this topic now, as our esteemed leader seems to think it’s ok to freeze Canadian citizens’ bank accounts for disagreeing with him. Politics should stay out of medicine, and a drama teacher should not be dictating what I have to inject into my system. Full stop.