Still here. In fact, not going very far

I’m not the story you’re looking for, but in the interest of making available, to you, an alternate view, I will share mine. It’s worth a try because I keep having this hope that the current paradigm of one sidedness will shift. 


I am a tax paying Canadian who despite living a clean and super healthy life, got a vaccine injury in 2009’s H1N1 vaccination initiative that has completely taken my ‘normal’ life away. I now have a deadly (unless on constant chemo, blood thinners, etc), incurable disease that was in fact mentioned in the H1N1 monograph as a rare potential negative side effect. I worked for Parks Canada, biked almost every day in summer, skied almost every day in winter, ate organic home made food, was a new mother, volunteered in my community, voted for our liberal government. I was you. And then I wasn’t. 

Since then, I haven’t been able to get a vaccine as my body’s immune system takes the signals from a vaccine for an increased immune response, can’t stop itself, and then goes after my own body. In my case, my vasculature (I have Wegener’s Granulomatosis, a type of Vasculitis). My daughter, who was just over 3 years old when I got sick, lived through having to say goodbye to her mother, for ever, more than once, and carries a significant amount of PTSD from seeing what a vaccine injury can do to a family and a person’s life. She also chose not to get the vaccine, especially since my diagnosis, we’ve learned that autoimmunity has two factors that are completely, certainly known… 1. there is a genetic predisposition, and 2. there is a trigger. For me that trigger was the vaccine. For her, she doesn’t want to find out if her genetics lean more toward me or toward her dad. Her dad is vaccinated, and he has had 3 shots. (I feel I can share that since personal medical privacy went out the window when our governments insisted on QR codes to be scanned by any host or hostess working at any eating establishment, or business letting people in.)

My kid and I are now both stripped of our chartered right to mobility, for the government described ‘selfish’ act of our legally and ethically described right to informed consent. The narrative has gotten so divisive that I can’t even have a reasonable conversation with anyone who is hard core pro vaccine and against self determination/choice (but most of them are pro-choice in other matters). We are to ‘follow the science’ but then are mocked for looking up the science, in essence saying that the only acceptable ‘science’ is that coming from government agents or our one sided media. 

Both my daughter and I had Covid in March. It was brought home by one of the two vaccinated people in our home, and everyone went through it. My mom, living with us since dad passed in 2020 (not of Covid, he got cancer) was the first to get it, and went through it the hardest. My husband, also vaccinated, went through about a week of feeling horrible, and he’s been fine since. I was told by my rheumatologist to get the monoclonal antibody treatment as I’m on heavy duty immune suppressing drugs, so I did so. My entire covid infection lasted 8 days from first symptom, to testing negative. I got the treatment on day 5, and was already feeling much better at the time. My daughter, now 15, was sick for about 5-6 days, and it was no worse than a regular flu. Her and I still can’t travel on a plane, train or boat. I can’t get a vaccine for 3 months after monoclonal antibody treatment (as per instructions), and they recommend that you don’t get vaccinated for two months after infection, so she can’t get one either, although she will not regardless. But we’re still denied our chartered right to mobility, while Canada lets anyone coming in to move about freely without testing, despite knowing that 96+% of vaccinated people who test positive are asymptomatic carriers. 

Before the vaccine we were all in this together. We were doing all of our safety efforts to ‘protect the vulnerable’ (hint: I’m that part of the population). Once the vaccine came out, and our government made it mandatory, the whole ‘protect the vulnerable’ and ‘we’re all in this together’ talking points took a long walk off a short pier. The vaccinated became the ‘hero’ and the unvaccinated, according to our Prime Minister, became a ‘waste of space’.

I’ve gone through a lot in my life. I’ve come through it all super positive (I started a foundation after diagnosis, and created an annual event to raise awareness for autoimmune disease – this site has the archives to show you if you’re interested), and I’ve always looked at the bright side of any hard situation. Our government has broken me over this. I’ve never felt so alone, so helpless, so discarded by those meant to support and protect me as I do today. I regret my life long support of liberal government, and liberal narratives, because now I see it’s all about virtue signalling and they don’t actually mean what they say. I hate the right of centre and their close mindedness, but I feel totally and completely betrayed by the left, and I can’t see myself fitting anywhere in this society right now. It’s really the saddest time of my entire life (and I was an immigrant kid who spent time in an Austrian prison and refugee camp, while escaping communism, who came to Canada without English and hat to fit in with my two outfits I came with, who was told to make my final arrangements when they misdiagnosed me with terminal cancer before I got my Wegener’s diagnosis, and many other things….) but now they’ve broken me.

The 85% of you who are vaccinated, don’t even know these rights are still kept from tax paying Canadians, because this blatant disregard for humans isn’t affecting you personally, and the media, including our local paper, refuse to let you know. I hear and see it all the time. If I feel comfortable enough with someone to mention this, they’re always wide eyed, at first telling me it can’t be true, then realizing they don’t actually know if it is or not… looking it up and going silent. Let me tell you from personal experience. It is true. Everything these days is tribal. Tribal to the left, and tribal to the right, and I fear that common decency, rational thought, and compassion, have completely abandoned our society. The right talk about themselves and fuck everyone else, the left talk about protecting ‘the vulnerable’ while literally giving the vulnerable the finger. Humanity is really sucking nowadays, and we’re devolving at an epic pace. And we have a prime minister who is testing how much he can get away with, and you 85% are letting him get away with far too much. He wont listen to me, remember, I’m a waste of space in his eyes, but he might listen to you heroes. Be a hero for more than rolling up a sleeve.

“Follow the science” ~ but only if it’s presented by a governing entity, and for God’s sake, don’t read any yourself

They hypocrisy of the day is stanky. The same people who tell you to ‘follow the science’ are the ones who post memes saying idiotic things like, ‘he died doing his own science’. So I’ve been curious what they conceive as ‘following the science’ in their mind. Is it blindly following what our governments are telling us is science, or does it actually involve reading anything scientific? Because if it’s not the latter, the ‘follow the science’ mantra should be changed to a ‘follow what your government tells you’ mantra.

Let’s look at some science from our Alberta Healthcare Covid website. Considering how many Albertans are sick with Covid, and how only those at risk are able to get PCR tests, the current numbers are pretty much null and void. The only numbers that can be legit right now are those of current hospitalizations, and those for vaccinations. I will spend this post looking at these two stats, and how they’re manipulated/presented to keep the average ‘follower of science’ from seeing the real picture, and the Nathans and Kathys of the world blindly arguing non arguments to support the manipulation.

Below is a screenshot of the most current hospitalizations. (Please note the second note below the table. Makes it hard to take things very seriously when in fact the table does include those with one dose – maybe they meant 4 doses, but the percentages do equal 100%, so…. maybe they’re combining 3 and 4 doses into the 3 dose row, who knows, but this is what happens when government tries to play science)

https://www.alberta.ca/stats/covid-19-alberta-statistics.htm#vaccine-outcomes

To make more sense of this we also need to look at the vaccination numbers so that we can relate them to the hospitalization numbers.

https://www.alberta.ca/stats/covid-19-alberta-statistics.htm#vaccinations

I was going to mention that the number for 2 doses in this is actually less than what it was two days ago, which raises some red flags, but then a table further down shows the real number (which is now higher than two days ago, but once again erodes trust that this is a competent representation of fact)

https://www.alberta.ca/stats/covid-19-alberta-statistics.htm#vaccinations

As I said earlier, this is the data that is presented to Albertans for digestion, but it is presented in such a way that makes the consumer of the data need to do more work. Also look at the number for three doses on the two tables, also different (we are looking at the ALL row on the second table and for the purpose of this exercise, I’ll use the second table as it appears more accurate – as all the numbers are going up, and it also gives us the total population to work from)

Let’s break down the numbers so that they more accurately portray the sub groups of vaccination status. We know that the Alberta population is 4,420,039. We know that 3,588,396 Albertans have had at least one dose of the vaccine. That leaves 831,643 Albertans who are NOT vaccinated. We also know that 74,947 Albertans have had a fourth dose. So based on those knowns, we can do a little grade school math and come up with each group’s numbers.

Actual numbers per vaccination status group

  • Unvaccinated: 831,643
  • 1 Dose: 191,802
  • 2 Dose: 1,750,318
  • 3 Dose: 1,571,329
  • 4 Dose: 74,947

Now we can do some math to show what’s important. Let’s look at current hospitalizations based on these numbers per 100,000 of their own group.

Hospitalization per 100,000 based on vaccine status

  • Unvaccinated: 254/831,643 X 100,000 = 30.54 Albertans per 100K
  • 1 Dose: 41/191,802 X 100,000 = 21.37 Albertans per 100K
  • 2 Doses: 333/1,750,318 X 100,000 = 19.03 Albertans per 100K
  • 3 Doses: 592/1,571,329 X 100,000 = 37.68 Albertans per 100K

I’ve also looked at the death rates and when you look at the death rates of people without any pre-existing conditions, the argument for vaccination with a technology that was previously used only in cases of extreme disease with minimal alternative options, the argument completely disintegrates. Let’s have a look.

https://www.alberta.ca/stats/covid-19-alberta-statistics.htm#vaccine-outcomes

In this case they really don’t have the one dose stats, but we can again do the math. The only issue is we don’t get to see the breakout of pre-existing condition vs no condition of the one dose deaths. There were 32 deaths for patients with one dose of the vaccine, but again we can’t break that one down. Let’s do the best we can with what we are given and figure out the per 100K rate of deaths based on vaccination status.
(Side Note:) I am making an inference on the condition vs no condition for the one dose group, based on an average of the difference of the other three groups. That average difference is .06, which brings us to 30 with condition and 2 without.

Deaths per 100,000 based on vaccine status WITH pre-existing condition

  • Unvaccinated: 237/831,643 X 100,000 = 28.50
  • 1 Dose: 30/191,802 X 100,000 = 15.64
  • 2 Doses: 238/1,750,318 X 100,000 = 13.60
  • 3 Doses: 386/1,571,329 X 100,000 = 24.57

Deaths per 100,000 based on vaccine status with NO pre-existing conditions

  • Unvaccinated: 25/831,643 X 100,000 = 3.0
  • 1 Dose: 2/191,802 X100,000 = 1.04
  • 2 Doses: 17/1,750,318 X 100,000 = 0.97
  • 3 Doses: 10/1,571,329 X 100,000 = 0.64

The above numbers are per 100,000 Albertans. Are these numbers really worth the cost of vaccinating every single one of us? Are they worth eliminating chartered freedoms from those who have chosen to forego vaccines, for whatever reason they have (informed consent being a legal and ethical right of every single patient in Canada). I think not.

Last but not least, check out the table of hospitalizations on their website in real living colour. It doesn’t paint a pretty picture of current hospitalizations based on vaccination status. My point isn’t to make anyone feel bad about their choices, just as I wish others wouldn’t do that to me, or worse yet keep my chartered freedoms from me as a punishment for said choices. The point is to promote a more informed populace that questions our government, and doesn’t just digest anything they throw at us as gospel. It isn’t so. Our media, whose job it is to hold government accountable, is failing their duties in an epic way.

Ask questions. Inform yourself. Don’t just blindly follow what you’re told to do because it comes from government. They have their own motives, and based on the above data, it doesn’t have much to do with our health or reality.

https://www.alberta.ca/stats/covid-19-alberta-statistics.htm#vaccine-outcomes

The dehumanizing of the unvaccinated

I got a vaccine injury in 2009 from the H1N1 vaccine and have not been able to get vaccinated since I made the connection (it almost killed me the first time, with a known potential but rare side effect, Vasculitis, and in my case Wegener’s Granulomatosis) but I was so into ensuring that I survived that in my fight to live, I didn’t make the connection at first. I did however make the connection when I had a booster, and my world, once again, fell apart and I had to spend another five years coming back from the brink of death. I have therefore not gotten vaccinated during this pandemic, as the risk benefit ratio is not in my favour, and I have paid a very steep price for this very personal decision. I, however, am lucky because I can get an exemption. My daughter who was 3 years old when I first got sick in 2009, has seen first hand how a vaccine injury can wreak havoc in a family including the many times she came to a hospital to say good bye to me, she does not have the opportunity to get a medical exemption. I believe she has some significant PTSD from our family’s experience, and will not get a vaccine because of that. We are both not allowed to get on an airplane, a train or a boat and travel – move freely – in our own country, a right afforded to us in the Charter of Rights, but taken away by a government that is not proactive, but fully reactive to social media pressures, and vote hunting.

As of April 1st, 2022, we are allowing people that are vaccinated to come into Canada via airplane without showing negative Covid results, but as we have all seen over the last few months, vaccinated people are just as much carriers/transmitters of Covid, yet a little more dangerous as they can go through it asymptomatic, while passing it around. In the United Kingdom, there are currently 4.9 million cases of Covid, and they have 9 out of 10 people vaccinated. So 90% of their population can come here and spread the virus, but I, a Canadian, who has paid into the Canadian social web for decades, who has had the disease, who has been treated with monoclonal antibodies (which means that even if I wanted to, I can’t get a vaccine for another three months) can’t travel on an airplane. How does this even make sense? My daughter has had the disease, and despite all the scare narratives, went through it with no more discomfort than a regular flu and is fully on the other side of it now. But she can’t travel either. 

I know that this is not top of mind because in Canada, as of April 1, 2022, 89% of Canadians over 5 years of age have had 1 dose of the vaccination, and 85% of the population over 5 years old is fully vaccinated. Their rights weren’t stripped from them, so they like to argue with me that I can travel freely, but they are wrong… according to the government website, nothing has changed for the unvaccinated. We are small minority of only 15% of the population, however that 15% when translated into real humans comes to 5,824,500 people that have been discarded by our government. Even a fraction of that number would make a pretty significant class action lawsuit, so I’m sending this out to potential class action oriented law firms (I’ve only sent one out now, but if they don’t answer I’m going full steam ahead). Our government is always just looking at re-electibility, which is why this 15% of the population means nothing to them, but they’re using our Charter of Rights and Freedoms as toilet paper and undoubtedly this seemingly small act is a litmus test of how far they can go in stripping rights and freedoms away under the guise of ‘good for the all’ narrative. Vaccinated people have forgotten what it feels like to be handcuffed by your government because said government is using our freedom of mobility as a manipulative tactic to enforce their will on the people: In the process completely disregarding the fact that a vaccine is a medical procedure, and as such, every patient has a legal and ethical right to informed consent or denial.

I hope this sparks enough outrage in whoever reads this, despite their feelings on the merits of vaccine mandates, that you can do something for the more than 5 Million people shackled by a heartless, flacid government. 

Politics is not part of this discussion because both sides of the political spectrum are downright nuts right now. We’ve been left option-less, but maybe something as crazy as accountability, where it hurts, can at least remedy the cruel, ruthless pandering our current regime has engaged in since the vaccines came out to play. Somebody please hold them accountable. 

Thank you for your time, and I hope that this leads to something life changing for people who feel like there is no hope or decency left in our institutions and those of us who feel like we’re yesterday’s garbage in the eyes of our elected officials. 

I pray, and I’m not a big prayer, but I have nothing left. 

References:

Mobility Rights: https://www.canada.ca/en/canadian-heritage/services/how-rights-protected/guide-canadian-charter-rights-freedoms.html#a2d

Medical Consent: https://www.cmpa-acpm.ca/en/advice-publications/handbooks/consent-a-guide-for-canadian-physicians#informed%20consent

Government vaccination travel policy: https://www.canada.ca/en/public-health/services/diseases/coronavirus-disease-covid-19/vaccines/vaccine-proof.html

Canada Vaccination rates: https://health-infobase.canada.ca/covid-19/vaccination-coverage/

Current UK covid numbers: https://www.bbc.com/news/uk-51768274

Sights might be off

Just a thought I’ve been pondering for the last year and a half.

Are we treating autoimmune disease at the wrong point of the disease process?

The treatment for the heavy duty (life threatening) autoimmune diseases involves beating down the adaptive immune system (B and T cells) with chemotherapy, biologics, immune suppressing drugs, and steroids. By doing this we bring a lot of risk into the mix and often the risk of treatment for the disease is on par with the risk of the disease itself.

The thoughts that have been swirling in my head, particularly last year while I fought with insurance and had to wait way too long to get my treatment (a treatment that costs over $12,000 and is the ONLY available treatment for me to stop a major flare – and keep in mind that a flare with Wegener’s is not what other people with autoimmune disease describe a flare as – with Wegener’s a flare is systemic, and can turn deadly within days, it’s not sore joints, or ‘I’m not feeling well today’ kind of thing.) On my last flare I got the usual granulomas throughout my lungs (scarring that litters the lungs and in my first round was misdiagnosed as terminal lung cancer) but I also had a few perforating lesions in my lungs (holes – one of them 3cm in diameter) and then just to add some fun to the game, I got significant Pulmonary Embolism that littered my lungs with blood clots. There wasn’t a lot of room for oxygen in my lungs last year, so I sat around a lot, sucking on oxygen, and thinking about solutions.

This is when I thought about the innate immune system. This is our first line of defence. This is where things get messed up in the first place, and we are not looking at what aspect of this initial response needs a fix. It could be the chemical messages that cells leave behind for the immune system to trigger a response. It could be those epithelial cells that are reading the mail all wrong. There are so very many steps that take place before our adaptive immune system comes into play, and eventually gets punished by chemo, ablated by biologics, and beaten down by pred. But the adaptive immune system is a player that becomes involved long after the initial onset of things going wrong. Also by ablating the B cells, as is done with the biologics, we are destroying all of our history of gathering immunity. All of our vaccines gone. All of our childhood disease history and adaptation, gone. After a treatment with biologics, the patient is essentially a newborn baby with about 6-8 months of waiting for the bone marrow to just even produce a batch of new B-cells (now with no memory of your life’s accumulation of immunity.) We are like the aliens in that Tom Cruise move “War of the Worlds”.  All you gotta do is sneeze on us, and poof, you win.

Below are some questions I posed using muscle testing to distinguish truth from falsehood in my assertions. (If you want to know more, you can grab any book by Dr. David R. Hawkins and read up on his gift to humanity.)

The current treatment paradigm for autoimmune disease is on the right track.
False
Treating the adaptive immune system using immune surpassing drugs is the most efficient way to treat autoimmune disease.
False
There is a cure for autoimmune disease.
True
Looking for answers in the innate immune response is a more viable treatment option. True
Neutrophils are part of the problem.
True
Examining the process of chemotaxis would lead in a direction of new treatment and discoveries.
True
It is possible to direct chemotaxis in a way as to not compromise overall health risks. True
Endothelial disfunction is a first step in autoimmune disease process.
True
Pathology in endothelial cells is a first step in autoimmune disease.
True
A positive finding in endothelial cell pathology affects autoimmune disease, heart and stroke, cancer, and mental health.
True

Autoimmune disease, heart and stroke, mental health and cancer are related in etiological manifestation.
True

Autoimmune disease is related to excessive or prolonged permeability of the endothelial monolayer.
True

There is a connection between vascular endothelial cell, neutrophil recruitment and hormone trafficking as part of the onset of autoimmune disease.
True

The answer to autoimmune disease lies in vascular endothelial cells.
Soft True (a little weaker than the others)

The answer to autoimmune disease lies in lymphatic endothelial cells.
True
The respiratory epithelium is the underlying problem with Wegener’s Granulomatosis. True

There is a way to improve respiratory epithelium function without the use of immune suppressing drugs.
True
Simple epithelial tissue abnormalities are the problem behind AI disease.
True

IL-8 (interluken-8) protein (chemokine) disfunction is the trigger that sets off autoimmune disease.
Soft True (again weaker than the other muscle test responses, but still not the same weakness as False.)

IL-8 disfunction can be repaired using genetic manipulation.
True

Decreasing glucose intake will alter the chemotaxis that gets the neutrophils going.
True

Sugar comes into play with the question near the end of my query. Maybe the thousand(s) fold increase of sugar intake in our population (from the perspective of our evolution) could be triggering the mixed messages during chemotaxis. After all watch your kid trying to communicate with you after a slurpee or a hand full of jelly beans. It’s never good. It’s always chaotic, and often loud and nonsensical. That is autoimmune disease.

I sent this idea out to Dr. Bruce Lipton last year when I was stuck in sick-world limbo, but I never got a response from him. It’s ok though, we all ignore some emails, so I can’t hold it against him. Can’t judge someone for stuff you yourself do. Someday we’ll change our sights. Someday autoimmune diseases research will save not only autoimmune disease patients but patients with cancer, AIDS, mental health, and heart and stroke diseases, as all of these are associated with an immune system misfire. Someday we will all be healthy and productive and in the sci-fi book I’m writing on this subject, I have figured out the answer, and with that answer come some added features we couldn’t have even dreamed of. But for that, you have to wait and read the book.

 

2017 PJ Day Events

This year we’re going to keep it simple.

Wear your PJ’s all day, take photos, share the photos and start the conversation going. Without the awareness, we lack the will, without the will we lack the funding, without the funding we lack a cure, without a cure we have too much pain, death, and high costs to families and our society. PJ Day raises awareness for autoimmune disease one PJ at a time. Feel free to start your own PJ Day event and raise the awareness bar from your corner of the world.

screen-shot-2017-03-02-at-10-57-03-am

Here’s another poster if you would like to print one out and share it.
pj-day-2017

At 5:30 join fellow PJ clad Jasperites and visitors for a collective PJ march downtown Jasper. We will meet at the Info Centre and start marching down Connaught Drive, turn back towards the centre of town at A&W down Patricia, finishing off at the Jasper Elementary School.

Go out for dinner and drinks in your PJ’s and have the most unique Happy Hour of the year.


If you are hosting additional PJ Day Events, add them below in our comments section. 

Please be sure to include the following:

  • event name
  • event location
  • event start time
  • event cost, if any
  • brief description of event

Changing the World

For those who don’t know Dr. David Hawkins (Doc Hawk) this might be hard to swallow, but worth a consideration. Humour is his tool for helping us understand transcending levels of consciousness.

We can only change the world by changing ourselves. It all starts from inside.

I so dig Doc Hawk. I’m paying some karmic debt in a hospital bed right now, and am grateful for it because once outta here, that debt will be paid and I can move forward to raise my own levels.

Keep calm and raise on.

Last One

It’s hard to think of healing, when you’re dying all over.

It’s not easy when you’re dealing with being a ‘crossover’.

You’ve always been the ‘strong one’, or so you thought…

but now your confidence is shattered, your certainty is naught.

 

Chronic illness has this way of taking everything you are,

and making every second of every day a new and permanent scar.

 

What we forget when we are in the thick of it,

is that we have a choice.

We can pull ourselves through

when we’re finally sick of it.

 

Sick of being a victim.

Sick of searching for blame.

Sick of being a patient.

Sick of playing their game.

Sick of the boxes of pills.

Sick of reporting your ills.

 

We wait for answers from outside of ourselves,

from people on pedestals, in white lab coats and shelves.

“But they know so much more about us than we”

They make us go “Ahhh” and bang on our knee.

We give them our power, and wait…. wait and see.

We’re holding our breath for answers from folks,

mere humans like us who poo and who poke.

Yet we wait till our death.

 

The role of the victim is a powerful one,

without its powerful juice, the evening news would be none.

Without it there would be no wars, no fights, no drama,

we could just get sick and deal with the trauma.

Too many get hooked on this powerful drug,

it doesn’t come in a box, just ‘down on your luck’.

 

The answer to healing lies within,

that’s your Higher Self, that barely audible din.

It’s whispering the secret that you need to hear,

that in your life YOU’RE the puppeteer.

The answer’s within, not outside

it starts with Courage, and it ends with LOVE.

PJ’s in 2016

 

In 2016, we had our last PJ Days organized by Find the Common Thread Foundation. It wasn’t going to be the last, but as the month went along, the realization came that we have done as much as we can do from our end toward our lofty goal.

It started off on February 27, 2016 and ended off on March 31, 2016. An entire month (Autoimmune Disease Awareness Month in the US) and inspired by the writings of Dr. Noel Rose, and the efforts of AARDA (American Autoimmune Related Disease Association.)

On February 27, 2016, Jasper Junior Olympics’ Dream Team (the little guys) raced in their PJ’s. Jasper Junior Olympics is the longest standing and largest participant ski race in North America with over 400 skiers racing the weekend.

The Dream Teamers raced in PJ’s and the organizers of the race donated $1 for every skier in the ENTIRE race – a surprise beyond belief. We were just thrilled to have them participate in PJ’s and help us with our awareness efforts.
February 29, was the official PJ Day in Jasper with our annual Jasper Volunteer Fire Brigade Pancake Breakfast, followed by a PJ Parade through town at lunch time. The turnout wasn’t near as big as last year’s over 700 people, but the spirit was as high as ever with those who made it out.

IMG_2018People throughout town did their own PJ events – PJ Yoga, PJ runs, PJ breakfasts, PJ fitness classes, PJ dinners, and more in the coming days that raised money and more important, raised awareness for this disease that kills more people than any other, yet for various political and economic reasons isn’t counted and not part of the official stats.

The true cost of autoimmune disease is absolutely staggering and one day in the future we will all be a little ashamed for letting this slide by the way it has thus far. All except the folks in Jasper who have gone above and beyond to do their part in righting a wrong.

 

IMG_2084The weekend of March 12 and 13 saw a gathering of Healers using various complimentary modalities and volunteering their services to not only raise the awareness bar but also give people supplementary healing techniques to aid in the healing process for a disease that according to the western medical paradigm, has no cure. It’s hard to heal your life when you’re told by your doctors that there is no cure.

This was a powerful weekend, and I had hoped that it would spill over into something bigger. My dream this year was that with the money we raised we could make Jasper the premier healing destination on the planet. I still think this is a very viable option, however I am not going to be part of this dream and will let it manifest on its own. I have a person in mind that would make this dream a reality, but I will let that person move at their own pace, and if it is meant to be then it will be.

JAG and PJsOn March 18, Jasper Artists Guild (JAG) put on a great show that was inspired by the theme of healing. The Healing Nature of Art was a quaint opening with great food and bevies supplied by The Downstream Bar and beautiful, thought inspiring, healing art donning the walls of the cozy little gallery. We are fortunate to live in this magical place with these magical people we call our neighbours and friends.

On Sunday March 20, 2016 we had a fantastic PJ moment at Jasper’s ski area Marmot Basin. My second family. People who have supported our efforts from day one. I don’t mean just day one of PJ Days, but day one of my personal journey with this disease. I am forever grateful for all they have done for me, my family and our foundation’s efforts through the last six years. We had a group PJ ski at Marmot Basin that felt as wonderful as the previous year’s PJ Parade in the town of Jasper. The backdrop of this PJ event was unsurpassed, and the spirit of the crowd was amazing.

 

IMG_2167The final event of the month, March 31, was a PJ Onesie party put on by the Jasper Legion. I couldn’t personally attend as I had a doctor’s appointment to deal with the new flare of my disease which is the reason that I am personally pulling out of this endeavour and the foundation. I am back with the warriors, fighting for a normal life. Fighting against a beast that has taken too many friends’ lives, and this is a fight that will require all of my efforts as there are new symptoms that are deadly serious, along, of course, with the treatment protocol (which is often the mortality factor after diagnosis – and this is where the stats fail the autoimmune disease patient.)

Jasper gets it. As far as I’m concerned, this is the most educated group of people when it comes to the issues of Autoimmune Disease. More so than even collectives of patients in some cases. That’s because Jasper is a magical place full of magical people who are full of compassion, empathy, curiosity and a will to do something right for the right reasons.

I am forever grateful to everyone who has helped out over the last five years. I have no words to express the gratitude to my sister, who despite trepidation and a strong aversion to go into her own history of Psoriatic Arthritis has stood behind me no matter what. Her amazing family who have put blood, sweat and tears (embarrassed tears) to help support my crazy visions over the last five years. I am eternally grateful to my own immediate family, my unwaveringly supportive husband, my inspiring daughter, my strong, solid parents, and of course my extended family, all of whom have been there through thick and thin. I am grateful to friends and neighbours and even strangers who took up the cause across Canada, the US, Australia, Mexico, Europe and who over the last five years have done so much on PJ Days to make them special and memorable and something that is meaningful and lasts in the psyche of our town and social consciousness here and abroad.


I am truly blessed, and despite the hard times, I can say with total sincerity that this disease has brought out so much more good than bad, and it has been a journey of discovery and awakening unlike any I could have dreamed up on my own.

It is now in your hands. If it is meant to grow, it will grow because of you. If not, then we certainly gave it the old college try, and there is absolutely nothing wrong with that. I leave you with this video I posted on Facebook before the month started… I was a little blown away by the number of views it got, but it is now gone as I have deleted my Facebook account – part of Letting Go of the stuff that isn’t good for me. I have been on steroids since the end of March and already look much different than I do in this video. Love the stuff 😉

No pred
March 2, 2016

About a month on 50mg of pred
May 10, 2016

Thanks for being so awesome everyone. May the Power (not Force) be with you.

With best wishes and much much Love,

Marta Rode
Founder of Find the Common Thread Foundation (now retired)

 

Long Time Coming

Hey friends,

It’s been a while. Life just got up and got away on me, and although feeling a little bit of guilt for not writing, I still haven’t gotten myself to do it – all kinds of excuses, but who cares about excuses because all they really are is a way to alleviate guilt.

I have to write about my newest discovery. That being Dr. David Hawkins and his body of writing.

I stumbled onto my first, his last, book in an almost mystical way that I wont go into here, but it was very much like that book wanted to be read by me. It was the jumping board that has led me into a number of his other books because I found my first, his last, so powerful and empowering. I know that different books, ideas, theories, affect us differently at different times in our lives, resonating the strongest when we are either ready for the ideas, or when we need them most. I believe that I had to go through what I went through with this autoimmune disease process to get me ready to comprehend and embrace the writing within.

I understand now that what I thought was the cause of the onset of my particular flavour of autoimmune hell, was only a small part of the problem that triggered the disease process. I understand now how many other factors were involved and how much power lies in our hands vs those of the medical profession. The medical profession is great at dealing with the acute phases of the disease process and pulling us out of the proverbial glue, but such a large part of the healing lies in our own hands, it’s unfathomable. This is a problem in that many people will choose to go the ‘lazy’ North American route of “fix me doctor with your magic pills and potions and machines that go ping” but I believe to be truly fixed, we need to do some heavy lifting inside our own minds. Heavy stuff, I know. But man oh man is it rewarding, and literally ‘enlightening’ in that you actually feel lighter when you start the process.

Ironically there are many doctors who upon feeling uncertain about a patient’s physical issues will default to telling that patient that the issues are in their heads and should maybe try some antidepressants. By sheer chance, they are partially right but for all the wrong reasons. They are right in that if one goes inside much pain can be removed, and triggering emotions can be tamed, but they are wrong to prescribe more drugs to numb the through process and assuming that your disease is ‘in your head’. My mom had a jerky female doctor who had the audacity to tell her “You’re as healthy as a horse. How can your husband stand living with your constant complaining?” Mom forbade me from calling that doctor’s office and giving her a piece of my mind, or of reporting her to the College of Physicians and Surgeons, but that doc will have her own issues to deal with in living with so much pride and jerkiness.

I will continue on the journey I’ve started from that first book of Dr. Hawkins that I read Letting Go, and I hope that you can read it and get as much as I’ve gotten out of the experience. This is a life changing book if you play around with this very easy technique to transcending levels of consciousness. Another one that is great (it does repeat itself a lot because it was taken from a series of lectures) is Healing and Recovery, which gives you an absolutely tangible technique of releasing pain on the spot. I can now get rid of headaches in about 30 seconds to a minute without any drugs. Pretty amazing since headaches are the first symptom that has plagued me since onset. I strongly believe that everyone with chronic illness needs to read these books if they want to get a handle on their lives. But we also all have to go through our own journeys of discovery and perhaps the payment of some karmic propensity that we’ve carried with us for who knows how long.

If you go into this with an open mind, an open heart, and an open soul, there is no predicting how far you will go in your healing and subsequent transcendence. I hope to go far enough to feel the non-linear existence but only time will tell.

In the meantime, get your calendars ready for March 18, 2016, when we have our FIFTH (woohooo) PJ Day to raise awareness and stand in solidarity with the millions out there dealing with this crap behind closed doors.

Peace to all.

I’ll be better at updating this blog

I haven’t been on here much but I’ve just gotten off Facebook and will have more time to put my thoughts down here without the added drama of constant bickering and distractions. I will write something thoughtful soon as I start planning our next PJ Day (2016) which will take place in the middle of Autoimmune Awareness Month.

Stay tuned and keep on fighting the good fight…. here’s to everyone’s ultimate health.

Peace and love!