I am just writing this to make sure we are all clear.
I am not one of those proprietary types who wants to keep control of everything. I’m not in this for the glory. I’m in it to do all that I can to move us closer to finding a cure for autoimmunity. Oooops, I used the word ‘cure’ that is trademarked by the Susan G. Komen foundation – millions of donated dollars for cancer research might come my way in lawyer costs to sue me. But I digress. The reason I want to push as many people out there who are suffering from an autoimmune disease and either don’t see much happening in terms of research in their diseases or else they see the possibly and power we can have by joining forces and pushing for autoimmune disease awareness and research, that reason is that I want a cure / common thread found before my daughter grows up and potentially has to deal with an autoimmune disease herself. Genetic predisposition and environmental trigger. That’s the lowest common denominator we have so far, and it doesn’t bode well for our kids. Let’s dig deeper.
What I really want to say with this post is that I don’t care about branding or about using the term find the common thread. If you are interested in helping, have some great ideas, have some friends with just the right skill set – do it, get on board, do something creative and funky in your community. If you have access to media – go for it. If you wanna do a calendar – go for it. If you want to get on a soapbox and preach in Hyde Park, go for it. I am personally blown away at the positive response in my little community. We have a bunch of stuff on the go, and I’d love to be able to help all around the world, but I have a limited number of spoons, if you know what I mean. I have a family, a job, a home to take care of and a not so healthy body. I’m doing a lot of this from my computer and you can too. Have fun brainstorming, go for coffee with some friends and just throw a bunch of ideas up in the air – and see what sticks. This is our little revolution. This is a super cool opportunity where a bunch of sick people can propel something to make a positive global change. I am still sick. I keep hoping to get back to my old normal, but I think it’ll be a tougher road than I originally thought, but my new normal is way cooler on the inside. I like the new me that has emerged because of this disease. It has toughened me up inside and I think that we can all probably say the same thing. So a bunch of weak on the physical side, but tougher than nails on the inside people can push and push and push until the world hears us and starts paying attention to this group of diseases that has thus far gone pretty much unrecognized.
YOU be the instrument of change. The power within you is greater than you can imagine.